Continuing Care Team for Buckinghamshire
Care from birth to 18 years of age.
Some children and young people (up to age 18), may have very complex health needs. These may be the result of:
long-term or life-limiting conditions
serious illness or injury
Children with such complex needs may need additional health support to that which is routinely available from GP practices, hospitals or in the community. This additional package of care is called continuing care. The clinical commissioning group, which is responsible for arranging for health services locally, has responsibility for assessing children and young people to see if they need a package of continuing care.
Who is eligible?
Any child or young person up to their eighteenth birthday who has a complex health need may be eligible. When a young person reaches 18, the NHS Continuing Healthcare arrangements apply.
There are significant differences between children and young people’s continuing care and NHS Continuing Healthcare for adults. Although a child or young person may be in receipt of a package of continuing care, they may not be eligible for NHS Continuing Healthcare. The Clinical Commissioning Group (CCG) will assess any young person in receipt of continuing care when they are aged 16 to 17, to see if they are likely to be eligible for NHS Continuing Healthcare when they turn 18. (Transition)
How can someone access continuing care?
A referral can be made by any health professional or carer who feels a continuing care package may be required. When a child or young person is referred for an assessment, the CCG might first check if they are likely to need a full assessment. A health assessor will then collect evidence of the child’s needs, drawing on the advice of health and care professionals. A national framework provides guidance, and a set of categories of needs to support decisions on whether or not a child has a continuing care need. An important part of the assessment is to capture the preferences of the child or young person and their family. The assessment will look at the current care being provided but a decision on whether or not a child or young person has a continuing care need is based on the nature of their needs, rather that the care available, or whether or not they have a particular condition.
Who decides? What happens next?
The health assessor will make a case to a panel of experts, who decide based on the evidence, and the recommendation, if the child or young person has a continuing care need. A decision is usually made 6-8 weeks from referral. Depending on the decision, a package of care is then agreed; some of this care may be provided through existing services; some may need to be specially arranged. The CCG will keep the package of care under regular review to ensure the developing child or young person’s needs continue to be supported. A child or young person’s eligibility for continuing care may change as their needs change.
When a young person reaches 18 years of age Continuing Care ends. An adult then may be entitled to NHS Continuing Healthcare. This is an ongoing package of health and social care that is arranged and funded solely by the NHS where an individual is found to have a primary health need. Such care is provided to an individual aged 18 or over to meet needs that have arisen as a result of disability, accident or illness. Contact the NHS Continuing Healthcare Team.
Who to contact
Where to go
- Continuing Care Team
Oxford Health, Albert House
Queen Victoria Road
- HP11 1AG
- Age Ranges
- 0 to 18 years
- Referral required
- Referral Details
Your GP, social worker, or staff co-ordinating your care should talk with you about NHS continuing healthcare, if they don’t you can ask them for an assessment.
Continuing Care is a general term that describes a tailor made package of care which is required over an extended period of time for children and young people with complex health needs which can arise due congenital conditions, long term/life limiting or life threatening conditions, disability, or the after-effects of serious illness/injury. However it is important to note that diagnosis of a particular disease or condition is not in itself a determinant of a need for continuing care
Continuing Care may be provided for children and young people whose health needs cannot be met by existing universal, targeted or specialist health services. The aim of the care package is to support the child/young person’s parents or carers to manage their child/young person’s care at home and/or in other settings. It may require the provision of services from the NHS, social care, education, or other organisations to enable the person to function in the community.
- Contact Name
- Children's Continuing Care
- Local Offer Age Bands
16 to 18
12 to 15
2 to 4
0 to 1
8 to 11
5 to 7
- Needs Level
- All Needs Met
- SEN Provision Type
- Targeted service or Specialist service (Referral required)
General Local Offer Response
- What needs does your service or activity aim to meet for children and young people with SEND and their families?
To provide advice and information for the initial EHC referral, assessment and contribution to the EHC plan.
- What outcomes does your service or activity aim to achieve for children and young people with SEND and their families?
To provide on-going support.
- How can children and young people with SEND and their families start to use your service or activity?
A professional (health or social care) will need to refer to service, see documents below.
- How is your service or activity fully accessible to children, young people with SEND and their families, for example, facilities, support from staff?
Via the referral process.
- How do you communicate with children, young people with SEND and their families?
Via phone, email, letter, visits to family home, schools, residential placements
- What training have your staff and/or volunteers received to support children and young people with SEND and their families?
- Last Updated
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