Parent Support Groups (SEND)
As a parent/carer of a disabled child/young person it can help to find out about local support groups where you can meet other parents and carers in a similar situation.
In Buckinghamshire there are a number of local support groups which have been set up and run by parents. These groups vary in size and what they offer which can include practical information and advice, friendship, emotional and moral support and activities for the family.
Some groups are for parents of children with the same condition, others are open to all parents and carers.
Carers Bucks is an independent charity supporting family carers of all ages, including young carers living in Buckinghamshire.
Clearly Speaking Specialist Children and Family Support Services offer many services which can be accessed by children and young people who have any level of special needs and/or disabilities and their families.
FACT Bucks - Families and Carers Together in Buckinghamshire, is a group of parents and professionals who meet to discuss real issues that affect children and young people with additional needs and disabilities in Buckinghamshire. As parents or carers, it is easy to feel your worries and concerns are not being taken seriously. FACT Bucks was set up to make sure your views and concerns are heard by those who plan and manage the services you and your child or young person relies on.
CONTACT - If there is no specific parent support group locally, Contact a Family (a UK wide charity providing advice, information and support to all parents of all disabled children), can put you in contact with a family whose child has the same diagnosis as your child.
Meet ups Buckingham - informal meet ups to offer support, signposting and reassurance that you are not alone. Join their Facebook Group.
Autism, Aspergers and ADHD
- There are three National Autistic Society branches in Buckinghamshire which are formed by local volunteers for mutual support covering Aylesbury Vale, Milton Keynes and South Buckinghamshire.
- GRASPS - Greater Support for Aspergers Supporting Parents and Siblings is an Aylesbury Vale based Facebook parent support group for higher functioning ASD.
- Space Support Chesham - This parent-led group meets monthly and offers support to parents of ADHD/Autism/behaviourally challenging children/young people through encouragement and education.
- South Bucks PDA (Pathological Demand Avoidance Syndrome) Support Group provides parent carers, who either have a diagnosis or believe their child may have PDA, with an opportunity to meet, share experiences and positively support each other.
There are more Autism Parent Support Groups and Other Help available where you can also meet other parents and carers in a similar situation.
- The Child Brain Injury Trust supports children and young people with acquired brain injury (an injury or accident that has happened to the brain after birth), their families and professionals involved with them.
- Families with a child with Down’s Syndrome are invited to join the South Buckinghamshire parent support group, or the North Bucks Downs Syndrome Group.
- BucksVision is a registered charity which provides support and services to anyone with serious sight loss throughout Buckinghamshire.
- Young Deaf Activities provides activities for children and young people and gives support to families by offering sign language tuition, monthly coffee morning and playgroup for under-fives and their parents/carers.
- Oxfordshire Deaf Society (open to Bucks families). One of the most important roles of Oxford DCS is to provide opportunities for families to meet and help each other.
- Speech and Language - AFASIC England is a parent-led organisation to help children and young people with speech and language impairments and their families. Although there is currently no AFASIC parent support group running in Buckinghamshire – there is a local contact who can offer advice and signposting.